SDBTT is committed to providing support for individuals living with brain tumours and their families, carers and friends.
As part of our commitment to developing and extending our support services, we are delighted to be able to announce that our patient support team has expanded with the recent appointment of Sylvia Woods, Patient Support Manager based in York, who joins our existing Patient Support Managers, Katie Sheen and Heather Waterton .
Katie Sheen |
Sylvia Woods |
Heather Waterton |
In addition Roz Osborne joins SDBTT as Head of Patient Support.
Roz Osbourne
Sylvia, a former SDBTT trustee, is a registered nurse and health visitor and will provide the paediatric lead in our patient service team. Sylvia’s son Neil sadly died as a result of brain stem glioma in 2000. Roz, who also has a nursing and health service back ground, will lead the work on SDBTT new patient service developments. Sylvia and Roz join Heather Waterton, our team lead in high grade tumours (based in Southampton) and Katie Sheen, our team lead for low grade tumours (based in Manchester).
We will also be recruiting for an SDBTT dedicated paediatric support worker in the next few months, following a successful bid to the BBC Children in Need Appeal for funding to support this post.
The SDBTT patient support team can provide individual help to all those lives are affected by brain tumours. We provide a listening ear, practical help and information and organise information and support days throughout the country. We also aim to raise awareness of the issues and challenges faced by those living with a brain tumour.
All the patient support team are looking forward to developing and expanding services, working in partnership with individuals living with a brain tumour and those they meet at various points of that journey.
The Patient Support Team can be contacted on 0845 130 9733 or at patientinfo@sdbtt.co.uk.
Guest Speaker - Benefits.
Please contact Heather if you would like to attend this meeting. A light lunch is provided and an idea of numbers attending is helpful.
- Telephone 0845 130 9733
- Email - heather@sdbtt.co.uk
Sponsored and administered by SDBTT Astro Fund.
at
The Royal Free Hospital
Pond Street, London NW3 2QG
9.30am – 4.30pm
This free information day is for the benefit of patients, carers,
friends and families living with low-grade gliomas.
We also welcome health professionals who wish to attend.
Presentations will cover topics including:
What is a low-grade glioma?
Living with Epilepsy
Treatment Options
Latest research
Coping strategies
Help with Finances
Sources of Support and Information
Please telephone 0845 130 7627 or email barbara@astrofund.org.uk
for more information and to secure a free place.
SDBTT Astro Fund
1st Floor Offices, 226B Moss Lane
Bramhall, Cheshire SK7 1BD
www.astrofund.org.uk
Offering Support and Funding Research into Low-Grade Gliomas
SDBTT registered charity number 1060627
Previous events
Information Day - 17th March 2008
Presentations and handouts from this well attended day in London are downloadable as pdf files.
Please email if you would be interested in future Information Days.
Katie Sheen raises a cup for National Tea Party Week for the SDBTT Astro Fund.
Katie Sheen, who lost her brother-in-law Paul Chamberlain to a brain tumour, was also a Trustee for the charity for many years, and was the founder member of the first Umbrella Group, the SDBTT Astro Fund. Katie still runs the SDBTT Astro Fund as well as being a Manager at our branch office in Cehshire, with the help of Barbara on administration.
Returning to School - for pupils with a brain tumour
This excellent guide is directed at teachers but may be helpful for parents as well. It is available free of charge from:
Cerebra
Principality Buildings, Guildhall Square,
Carmarthen SA31 1PR
Tel: 01267 244200
A trial looking at radiotherapy with Tarceva for lung cancer that has spread to the brain (TACTIC)
This clinical trial is being run by Cancer Research UK . They wish to recruit people with advanced non small cell lung cancer which has resulted in secondary brain cancer.
In this trial, people with non small cell lung cancer that has spread to the brain will either have
The aim of the trial is to find out if Tarceva combined with radiotherapy to the brain is a better treatment than radiotherapy on its own. And to find out more about the side effects of the treatment.
Please visit the website or contact Christina Wadsworth for more information.
